A Death is Coming to the Family

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My uncle is dying. Early last summer we found out that cancer had once again infiltrated our family. I called him when I heard the news, he was surprised – I hadn’t spoken to him over the phone in over 10 years – I had seen him in that time. He told me his diagnosis and he remained positive but I already knew what stage 3b lung cancer meant and I knew in my heart that he would not survive the onslaught he was about to go through. I wasn’t trying to be negative – it was just something that I knew; I did not share that news with anyone but my husband.

My uncle’s impending battle arrived on the heels of my mother’s 12 month battle to keep her partner and my grandmother and grandfather alive or at least comfortable. Joe, mom’s partner of 22 years passes in January 2009; my grandfather passed the following May. My grandmother, a tough old broad, is hanging in – though I can’t imagine what it must be like to watch her youngest slowly precede her in death. I have stayed mostly out of the fray of emotions during my uncle’s illness. I live too far away to “run up” to visit and several surgeries of my own have kept me never straying too far from my bed.

A prolonged illness and imminent death is not easy for most people. Unfortunately, for me it is also a trigger for depression, so I stay as removed from it as possible – especially when cancer is involved. My step-father died after losing his battle with lymphoma. My relationship with him is the stuff of many more posts – suffice it to say that his death laid the path to my eventual diagnosis of bipolar disorder.

Since that time, I have lost others – all the while maintaining my distance. Honestly, the closest I’ve been to death was 19 months ago when my beloved dog, Fox, had to be helped on his way to the otherside – he had bone and lung cancer. I sobbed, my husband sobbed, I sobbed harder – that pain was pure and uncomplicated by years of a less than perfect relationship. When Fox died, with my hands on his face and his eyes locked on mine, my heart stopped beating for a while as my pain and sadness flowed freely.

When a family member dies it’s never uncomplicated and that’s the part that sets off my triggers. In my head there is some weird struggle over who is more hurt by the loss – it’s embarrassing to even admit. Because I knew my uncle would not survive his illness, I tried to be there instead for my cousins, my mom and my grandmother. I send him cards to let him know that I’m thinking of him but I don’t call – I don’t want to be in the way. I pray that he crosses over quickly each time I’m given a report of his terrible pain. I search for things to say as I listen to my mother cry over the phone. I discuss travel arrangements for the funeral that is to come and I send facebook messages of love to family and friends – all the while keeping my distance.

My mother bridged the distance today with on brief comment and now I can’t sleep as I try to reel in the complicated years of relationships that revolve around my mother. She called me to tell of her weekend with my sister at my uncle’s house in Connecticut. She told of his physical pain, his wife’s physical and emotional pain and the sheer exhaustion of his oldest son who has taken leave to help out. I asked her if she had told her brother that it was okay to go – she said she had and started to cry. And then I asked her if she understood why I was not having the hard time that she was having – stupid, door opening question.

She said she knew that he and I weren’t that close. I reminded her that as the eldest niece, I’d actually known and loved him 15 years longer than his own kids.

Well, she knew that I had been angry with him. Yes, when I was in my late teens he admonished my mother (his big sister) for letting her kids be out of control- so; yes, I had been angry with him almost 30 years ago because he’d hurt her feelings. Oh, yeah there was that comment he made when he and I were both going through a divorce and he eluded to the fact that I was not a good mother – just like his soon to be ex-wife (and my favorite aunt) – that had been 16 years ago.

Mom went on to say a few other things and we finally just said goodbye.
What I wanted to remind her was that my beloved Uncle Bob is only 17 years older than me – hardly old enough to be my parent. That during the first year of my life, she and I lived with my grandparents while my uncle who was a senior in high school. I wanted to say that he is the only family member that I resemble, that he and Aunt Pat made me their first child’s godmother, that they were my sponsors at Confirmation and that I was the first of my generation to love him and that losing him will hurt me in ways that no one else will understand.

Of course as I write this I realize that my brain is twisting my thoughts, creating anger where there is only sorrow and a distinct need to not feel it. My Uncle Bob’s death will touch many people including four generations of our family. With any luck my twisty brain will stay home and only my heart will show up to comfort and be comforted when his time has come to pass.

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Just Not My Season

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How is it that my aloneness can turn a regular day into a cold, murky place where it rains with no wind and I can’t put a coherent thought together?  I’m uncomfortable in my own skin so much so that I had to talk myself into the shower today.  I’m a water person so when I don’t want to shower it’s an issue.  I recognize this, so I jumped in quickly thus assuring myself that it was not really an issue.  Uh huh.

My below the surface, well-hidden stress has my face broken out like a chocoholic fifteen-year old.  I’ve been here before – 30 years ago – breaking out wasn’t pleasant the first time and much less so in my 40’s.  I’ve been eating crap lately – a difficult and painful task after gastric bypass.  Seems all I want to eat is French fries.  That’s some healthy stuff there.  (Think I’ll go turn on the oven)

My dreams have been really vivid lately, an additional sign of lurking issues.  The dreams make no sense but seem very real.  I sleep a lot lately; also not a good sign but a fertile ground for those vivid dreams.  I’ve told my husband that a wave was heading for the shore; not much he can do but pay attention and hope I don’t drown or pull us both under.  Unfortunately, he’s away right now and my daughter’s at school or work so there is no one around to know that I have to shove myself out the front door to get to the life boat.

But where to go once I’m out of the house?  I want to go shopping but that’s a slippery slope.  I’ve been decorating for Christmas and that keeps me busy but isn’t keeping me happy – a strange and unusual experience.  I love this time of year and it rarely brings on depression, if anything I tend to get manic with all of the hustle and bustle.   Not this year, sadness is swirling through my bloodstream, splashing on the shores of my soul and dampening my holiday spirit.  The worst part; I don’t know why.  I don’t always know why but it’s usually not so random.  I don’t do random well.  I’m on a need to know basis with my episodes and right now, I need to know.  But no one’s talking; my brain is providing no clues or maybe I’m just not listening.

The oven just beeped – French fries are ready.  Gotta go.

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A Bipolar Vacation

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When I scream do you listen or do you just hear

Do you know that it’s panic, anxiety, fear

When depression attacks, leaves me deep in the well

Do you know that I’m lost; I’ve been dropped into hell

I try to escape; I long for salvation

But no exit is near on bipolar vacation

well

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What’s Yours is Mine, What’s Mine is Yours

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When your pain is my pain and my pain is yours

The windows slam shut and so do the doors

Thrown into the darkness, though never alone

We each gasp for breath as we each search for home

Sinking then drowning – what else can we do?

Would I have come here had it not been for you?upset couple

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Out of Context – Life of a Bipolar Chick

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Per Dictionary.com the word Context means the following:

con⋅text (noun)

1. the parts of a written or spoken statement that precede or follow a specific word or passage, usually influencing its meaning or effect: You have misinterpreted my remark because you took it out of context.
2. the set of circumstances or facts that surround a particular event, situation, etc.

Bipolar Disorder is an Out of Context mental illness. It takes normal, everyday events or comments and knocks them out of context, sending them back to my brain jumbled, with a trigger attached no longer allowing me to make sense of the situation, much less react in an appropriate manner. This has the ability to leave me paranoid, irrational, confused and suicidal, among other things.

The worst part about thinking out of context, is when those around you realize that’s how your brain works and they use it to their advantage. My ex-husband once told me during an argument that he could love me more if I were prettier. Yes, his exact words; “I could love you more if you were prettier.” There were no surrounding sentences to place this comment into some wacked out context; it was a random thought thrown towards my head with the speed of a flying dinner plate. He tried to play it off, told me I had misunderstood…again. That I was always picking individual comments and holding people accountable for my “out of context” interpretation.

To this I say: HEY! Speak in context…say what you mean and mean what you say. I’ve got enough trouble trying to sort out all your crap on a daily basis. I don’t want to have to decipher your comments as if they were Di Vinci’s Code. Yes, my brain twists the truth and tells me lies…I don’t need any help from idiots who think it’s funny to watch me react badly to something and then try to wrestle myself out of the cage I’ve locked myself into.

When I am living “Out of Context”, I am forever apologizing for not understanding what someone was trying to say, for taking something to heart that wasn’t meant to go there or for reacting to someone else’s action as if it were meant only to hurt me. This is why I have had to learn about my “triggers”.

Triggers are unhappy, sad or even joyful events that can make depression or mania more likely to occur. The baseline trigger is generally something that happened in the past which caused an extreme reaction and now some new event twists the Bipolar brain into a visceral response because of some familiarity to the initial situation. With the exception of the originating moment, the new reaction is an “out of context” moment caused by Bipolar Disorder. This is why we have to learn our triggers, understand how they played out in the first place and put the whole situation back into context to help avoid new and exacerbated reactions.

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